Care should always be shared care. I know my body and I need expert help and advice to navigate what I may need to help me move into remission. I need to be listened too and not dismissed.
With better medication this needs to be the cornerstone of treatment. I support all your efforts in this area
Thank you for this. I have microscopic collagenous colitis and have been more or less housebound for the past year and a half. I failed Entyvio but seem to be responding to Mesalamine (Salofalk) these past ten days, which is welcome respite from 30 to 40 bathroom visits per day while on Entyvio. I visit online forums on Facebook, and count myself lucky to live in Switzerland and have excellent access to doctors, colonoscopies, and medication. These diseases are hell to live with.
Care should always be shared care. I know my body and I need expert help and advice to navigate what I may need to help me move into remission. I need to be listened too and not dismissed.
With better medication this needs to be the cornerstone of treatment. I support all your efforts in this area
very recent discovery https://today.ucsd.edu/story/rebalancing-the-gut-how-ai-solved-a-25-year-crohns-disease-mystery we would love to hear you comments on it!
Thank you for this. I have microscopic collagenous colitis and have been more or less housebound for the past year and a half. I failed Entyvio but seem to be responding to Mesalamine (Salofalk) these past ten days, which is welcome respite from 30 to 40 bathroom visits per day while on Entyvio. I visit online forums on Facebook, and count myself lucky to live in Switzerland and have excellent access to doctors, colonoscopies, and medication. These diseases are hell to live with.